{"id":26535,"date":"2024-07-19T16:21:51","date_gmt":"2024-07-19T21:21:51","guid":{"rendered":"https:\/\/sandwichedkc.com\/?p=26535"},"modified":"2024-07-19T16:21:51","modified_gmt":"2024-07-19T21:21:51","slug":"resources-for-parkinsons-caregiving","status":"publish","type":"post","link":"https:\/\/sandwichedkc.com\/es\/resources-for-parkinsons-caregiving\/","title":{"rendered":"Resources for Parkinson&#8217;s Caregiving"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Parkinson\u2019s disease (PD) is a brain disorder that causes unintended or uncontrollable movements, such as shaking, stiffness, and difficulty with balance and coordination. Like any caregiving journey, caring for a loved one with PD has its ups and downs, but it may come its own set of unique challenges.  <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We\u2019ve compiled some resources to help you learn more about caring for a loved one with Parkinson\u2019s and find PD-specific support.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Local Resources<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/www.kumc.edu\/research\/parkinsons-disease-and-movement-disorder-center.html\" data-type=\"link\" data-id=\"https:\/\/www.kumc.edu\/research\/parkinsons-disease-and-movement-disorder-center.html\" target=\"_blank\" rel=\"noreferrer noopener\">University of Kansas Medical Center Parkinson&#8217;s Disease and Movement Disorder Center<\/a><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We are fortunate in the KC Metro to have an internationally recognized center for Parkinson&#8217;s disease. The KUMC Parkinson&#8217;s Disease and Movement Disorder Center provides: <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>diagnostic and treatment services for persons with\u00a0Parkinson\u2019s disease\u00a0and related conditions <\/li>\n\n\n\n<li>specialized speech, swallowing, occupational and physical therapy as well as social services<\/li>\n\n\n\n<li>educational information\u00a0about\u00a0Parkinson\u2019s disease,\u00a0progressive supranuclear palsy,\u00a0multiple system atrophy,\u00a0Lewy body dementia,\u00a0and\u00a0essential tremor<\/li>\n\n\n\n<li><a href=\"https:\/\/www.kumc.edu\/research\/parkinsons-disease-and-movement-disorder-center\/patient-care\/support-and-resources.html\" target=\"_blank\" rel=\"noreferrer noopener\">support groups for people with Parkinson&#8217;s Disease and family caregivers.<\/a><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.parkinson.org\/heartland\" data-type=\"link\" data-id=\"https:\/\/www.parkinson.org\/heartland\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Parkinson&#8217;s Foundation<\/strong><\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The Parkinson&#8217;s Foundation is one of the most recognized organizations in the world when it comes to information and support for PD. <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Visit the Parkinson&#8217;s Foundation <a href=\"https:\/\/www.parkinson.org\/resources-support\/carepartners\" target=\"_blank\" rel=\"noreferrer noopener\">caregiver portal<\/a> to better understand the disease and find PD specific resources and support. <\/li>\n\n\n\n<li>View the list of <a href=\"https:\/\/www.parkinson.org\/heartland\/local-resources#local-resources\" target=\"_blank\" rel=\"noreferrer noopener\">support groups hosted by Parkinson&#8217;s Foundation of the Heartland<\/a>. Support groups are offered for both people with PD and family caregivers. <strong> <\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/www.apdaparkinson.org\/community\/missouri\/\" data-type=\"link\" data-id=\"https:\/\/www.apdaparkinson.org\/community\/missouri\/\">American Parkinson&#8217;s Disease Association &#8211; Missouri Chapter<\/a><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The Missouri Chapter, and they do have virtual support groups for both adult children and people with PD.<br>https:\/\/www.apdaparkinson.org\/community\/mo-resources-support-2\/support-groups\/<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><a href=\"https:\/\/www.thepewc.org\/\" data-type=\"link\" data-id=\"https:\/\/www.thepewc.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Parkinson\u2019s Exercise and Wellness Center<\/a><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The Parkinson&#8217;s Exercise and Wellness Center, located in Overland Park, provides an array of exercise programs that target motor and nonmotor skills, balance, speech, and sensory function to improve the lives of people with Parkinson\u2019s Disease. The Center offers weekly fitness classes for caregivers and people with PD, twice-monthly support groups for family members, and quarterly support groups for people with PD. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<h2 class=\"wp-block-heading\">National and Online Resources<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Stanford Medicine<\/strong> compiled a <a href=\"https:\/\/med.stanford.edu\/parkinsons\/support\/online-groups.html\" target=\"_blank\" rel=\"noreferrer noopener\">list of online support groups and communities<\/a> for family caregivers and people with PD.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.pmdalliance.org\/\" data-type=\"link\" data-id=\"https:\/\/www.pmdalliance.org\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>PMD Alliance<\/strong><\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The PMD Alliance, founded in 2019, is a national organization that offers free, high-quality events, resources, and community groups, as well as cutting edge continuing medical education opportunities for healthcare professionals. <a href=\"https:\/\/www.pmdalliance.org\/care-partners-family-members-adult-children\/\" target=\"_blank\" rel=\"noreferrer noopener\">Check out PMD Alliance&#8217;s programs and resources designed\u00a0especially for\u00a0family caregivers of people with PD<\/a>. PMD Alliance also offers <a href=\"https:\/\/www.pmdalliance.org\/virtual-groups\/\">virtual resources and support groups<\/a>, which can be accessed through their app.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><br><strong><a href=\"https:\/\/davisphinneyfoundation.org\/\">Davis Phinney Foundation<\/a><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Founded in 2004, the Phinney Foundation is a national nonprofit helps people live well with Parkinson&#8217;s TODAY through resources, events, research, community, and more.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"has-medium-font-size wp-block-paragraph\"><em>Do you know of helpful Parkinson&#8217;s disease resources that aren&#8217;t listed here? <\/em><br>Drop a comment below or <a href=\"https:\/\/sandwichedkc.com\/es\/contact\/\" data-type=\"page\" data-id=\"29\">get in touch with us<\/a>. We&#8217;d love to hear from you.<\/p>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Sandwiched KC is here to help as you navigate caring for a loved one with Parkinson&#8217;s Disease. We can assist you in finding resources, support groups, and programs that can help. Please\u00a0<a href=\"https:\/\/sandwichedkc.com\/es\/support\/get-help\/\">reach out for support<\/a>\u00a0or\u00a0<a href=\"https:\/\/sandwichedkc.com\/es\/support\/\">find out how we assist family caregivers in the KC metro<\/a>.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Parkinson\u2019s disease (PD) is a brain disorder that causes unintended or uncontrollable movements, such as shaking, stiffness, and difficulty with balance and coordination. Like any caregiving journey, caring for a loved one with PD has its ups and downs, but it may come its own set of unique challenges. We\u2019ve compiled some resources to help [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":26537,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"","_et_gb_content_width":"","wds_primary_category":1,"footnotes":""},"categories":[67,1],"tags":[199,178,275,274,92,49],"class_list":["post-26535","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-resources","category-uncategorized","tag-caregiver-support-group","tag-caregivers","tag-parkinsons","tag-parkinsons-disease","tag-resources","tag-support-group"],"_links":{"self":[{"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/posts\/26535","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/comments?post=26535"}],"version-history":[{"count":0,"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/posts\/26535\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/media\/26537"}],"wp:attachment":[{"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/media?parent=26535"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/categories?post=26535"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sandwichedkc.com\/es\/wp-json\/wp\/v2\/tags?post=26535"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}